How will we use information about you?
We will need to use information from you, your medical records, and your GP for this research project. This information will include your:
Initials
NHS number
Name
Contact details
Hospital number
Medications
Medical history
Study related clinical data, including-among others-scans and images of your eyes
People will use this information to do the research or to check your records to make sure that the research is being done properly. People who do not need to know who you are will not be able to see your name or contact details. Your data will have a code number instead.
Moorfields Eye Hospital NHS Foundation Trust is the Sponsor of this research. Moorfields Eye Hospital NHS Foundation Trust is responsible for looking after your information. We will not share your information related to this research project with any other organisations
We will keep all information about you safe and secure by:
Storing them securely within Moorfields Eye Hospital systems
De-identifying them (with your name and NHS number removed)
If you have concerns about how your information is handled, you can contact the Moorfields Data Protection Officer at moorfields.ig@nhs.net
International Transfers
Your data will not be shared outside the UK.
How will we use information about you after the study ends?
Once we have finished the study, we will keep some of the data so we can check the results. We will write our reports in a way that no-one can work out that you took part in the study. All the de-identified information from the study will be published in medical journals and presented to relevant health professionals at meetings and conferences.
We would also be pleased to provide information about the results of the study to anyone who has taken part. Individual patients will not be identified in any reports or publications arising from the study.
We will keep your study data for a maximum of 10 years. The study data will then be fully anonymised and securely archived or destroyed.
What are your choices about how your information is used?
You can stop being part of the study at any time, without giving a reason, but we will keep information about you that we already have. You have the right to ask us to access, remove, change or delete data we hold about you for the purposes of the study. You can also object to our processing of your data. We might not always be able to do this if it means we cannot use your data to do the research. If so, we will tell you why we cannot do this.
Where can you find out more about how your information is used?
You can find out more about how we use your information:
Our leaflet at www.hra.nhs.uk/patientdataandresearch
By asking one of the research team
By sending an email to the Data Protection Officer: moorfields.ig@nhs.net
Multifocal intraocular lens in bilateral cataract surgery is the G-PERFECT study. The study is sponsored by Moorfields Eye Hospital NHS Foundation Trust and funded by Alcon Eye Care UK Limited.
