This could include:
- Your general practice, pharmacies and dentists
- Hospitals, walk-in centres, out-of-hours doctors, NHS 111
- Community services, such as nurses, midwives and therapists
- Local authority departments, including social services, education and housing
- Voluntary care organisations
- Private-sector organisations, such as private hospitals, care homes and hospices
- Your family and carers – it might be helpful for some members of your family, friends or carers to see your health record, but we will show it to them only if we have your consent
We will normally tell you before we share your information and will confirm that you agree to this. Where possible, we will give you a copy of any letters we write about you.
Sometimes we have a legal duty to provide information about people; for instance:
- Notification of a birth
- Reporting some infectious diseases
- Reporting gunshot wounds to the police
- When a court order instructs us to do so
Records may be shared without the patient’s consent in exceptional situations, such as:
- When a serious crime has been committed
- If there is a serious risk to the public or NHS staff
- To protect children or vulnerable adults who are unable to decide for themselves whether their information should be shared
The Secretary of State for Health may give permission, under strict conditions, for us to use or share information from which you can be identified; for instance, to keep registers of cancer patients or to check the quality of care we provide.
We are always seeking to improve the treatment of eye diseases and carry out research to find the most effective ways of achieving this. You might be asked if you would be willing to take part in research projects but you do not have to agree if you do not want to.
Research that involves patients, use of their tissue or their personal information requires their explicit written informed consent. Before you are asked for your consent, you will be given a patient information sheet telling you exactly what information will be collected and who will have access to it.
This type of research must also be approved by a number of relevant regulatory authorities; for instance, the NHS Research Ethics Service.
A small number of research projects are undertaken that involve a retrospective review of patient information. If you can be identified, this will only be done by the clinical team treating you or with special permission. Otherwise, the information shared with researchers will not include personal details so that patients cannot be identified.
Moorfields Eye Charity
Charitable support continues to play a crucial role in so much of what Moorfields is able to achieve. In recent years, for example, charitable donations have supported the appointment of a number of key individuals to support our pioneering research with our research partners at the University College London (UCL) Institute of Ophthalmology; it has also paid for state-of-the-art equipment and financed some significant new developments, including our new children’s eye centre and a new stem cell research unit to allow us to meet the increased demand for corneal and retinal stem cell therapies and focus on the next wave of innovation.
From time to time, we would like to use your name and address to send you information on the work of Moorfields Eye Charity. If you would rather we did not use your name and address for the purposes of our charity (including creating a profile of your interests and preferences so as to ensure this information is best used and you are not contacted unless it seems appropriate to do so), please write to Information Governance, Moorfields Eye Hospital NHS Foundation Trust, 162 City Road, London EC1V 2PD. Please ensure that you include your full name and address, including your postcode.